Enable the future of health: federated, citizen-centric and insight-driven!

The European health domain is highly fragmented. Gaia-X has set the goal of making health data accessible for the creation of health insights to improve the prevention and care of each individual citizen, for an improved dialogue between citizens and healthcare professionals, and for the progress of health policy and medical innovation. Access to health data will be balanced with the privacy of this sensitive personal data, such that citizens stay in control entirely. The Gaia-X framework enables health data spaces that are citizen-centric, sovereign and federated and that can be deployed with trust and at scale. These data spaces integrate existing data initiatives in a federated structure and invite new initiatives to join the federation, to progress medicine, reduce costs and improve health for all.

Note: we use the generic term “citizens” to identify all people, patients for sure, including acute, chronic and mental care and rehabilitation, and also including healthy people, working on staying healthy, and as such to include prevention.

Read our full announcement here.

Read the full event report here.

Agenda

10:00 – 12:00 – Chapter 1: General Session

PPT presentations: here

Watch the full recording of this session: here

Moderators: Ulf Nehrbass & Bert Verdonck

• 10:00 – 10:04 – Welcome & Opening – Ulf Nehrbass & Bert Verdonck
• 10:04 – 10-14 – Introduction – Francesco Bonfiglio & Jeroen Tas
• 10:14 – 10:19 – Video – Citizen perspective – Karl Wouters
• 10:19 – 10:23 – Needs from clinical/academic world – Emmanuel Bacry
• 10:23 – 10:25 – Video – Needs from the industry – Cecilia Bonefeld-Dahl
• 10:25 – 10:27 – EIT Health research summary – Cristina Bescos
• 10:27 – 10:31 – Video – Needs from EU university hospitals – Martin Hirsch
• 10:31 – 10:35 – From – To: show the direction and present main ideas from Health position paper – Bert Verdonck
• 10:35 – 10:50 – Video interview Jeroen Tas – Maurice vd Bosch, CEO of OLVG Hospital Amsterdam – the future, more virtual hospital perspective – Maurice vd Bosch
• 10:50 – 11:04 – Panel and Q&A: summarize all multi-disciplinary needs and opportunities, cross-fertilize research – clinical domain – industry – Ulf Nehrbass, Jeroen Tas, Francesco Bonfiglio, Dipak Kalra
• 11:04 – 11:09 – Data* Acts and EHDS – Thomas Hellebrand
• 11:09 – 11:14 – TEHDAS status of investigations – Tapani Piha
• 11:14 – 11:29 – Gaia-X Infrastructure & Data ecosystem – trust framework – Pierre Gronlier
• 11:29 – 11:34 – Health use cases – overview – Ulf Nehrbass
• 11:34 – 11:39 – Health enablers – overview – Bert Verdonck
• 11:39 – 12:00 – Panel and Q&A: how to make it work, converge existing and emerging new initiatives, Gaia-X, Ignite-X – Bert Verdonck, Jeroen Tas, Francesco Bonfiglio, Dipak Kalra

12:00 – 13:00 – Break

13:00 – 15:00 – Chapter 2a: Breakout Use cases

Watch the recording of this session: here

• Welcome & Opening
• Introduction
• Overview of the Breakout Sessions

• #1 Genomics, Imaging and Clinical Data for Cancer Care and Rare Diseases
  • PPT presentations: here
  • Moderator: Andrea Derix
  • Technical Facilitator: Francesca Nista
  • Presentations and Speakers:
    • Use case #1
      • Beyond 1M genome project, Juan Arenas Marquez, ELIXIR
      • Clinical genomics cloud use cases, Dr. Patrick Kemmeren, Princess Maxima Center for pediatric oncology
      • AI applications in omics studies: what we need, Jean Marc Christille, Astronomic Observatory of Val D’Aosta
      • Carecol – gastric cancer data collaborative, Andrea Pescino, Stratejai and Elena Bonfiglio, Microsoft
      • de.NBI Cloud: not a data space (yet), Harald Wagener, Berlin institute of health, Charite

• #2 Patient Driven Measurements and Outcomes
  • PPT presentations: here
  • Moderator: Jasmin Schulz, Luxembourg institute of health
  • Technical Facilitator: Kevser Fünfgeld
  • Presentations and Speakers:
    • Use case #2
      • A common health data space: HEALTH-X dataLOFT, Roland Eils, Berlin institute of health, Charite
      • TEAM-X: trusted ecosystem of applied medical data exchange, Jochen Bauer, Friedrich-Alexander University, Erlangen-Nurnberg
      • Clinnova – cross-border health innovation, Jasmin Schulz, Luxembourg institute of health
      • Digital health applications, Ronald Gräfe, kaia health
      • Secur-e-Health: privacy preserving, cross-organizational analytics, Sarah Van Drumpt, TNO

• #3 Longitudinal Patient Records Exploration
  • PPT presentations: here
  • Moderator: Jeroen Tas, Philips & Francesco Bonfiglio, Gaia-X
  • Technical Facilitator: Giuditta del Buono
  • Presentations and Speakers:
    • Use case #3
      • Remote patient monitoring for heart disease patients and early treatment for stroke patients, Michale Mossal, NTT and Jacques Federspiel, Hopitaux Robert Schuman
      • Interoperable and citizen controlled cross-border sharing of diabetes data, Mikael Rinnetmaki, sensotrend
      • Connecting clinical data warehouses to computing resources in the cloud, Romain Bey, AP-HP
      • A data space for blended care, Nico van Rooijen, Philips
      • Using AI in transplant optimization, Dr Ignacio Revuelta,
      • C4Yourself project, Jildau Bouwman, TNO

• #4 Building blocks: identity, consent & trust
  • PPT presentations: here
  • Moderator: Erwin Dijkstra & Claire Unwin, Atos
  • Technical Facilitator: Thomas Stevens
  • Presentations and Speakers:
    • Use case #4
      • Digital responsibility goals and Gaia-X, Jutta Meier, Identity Valley
      • Data altruism and citizen trust, Joan Guanyabens, SalusCoop
      • Consent and agreement management, Lal Chandran, iGrant.io
      • eIDAS: trusted digital identity, Dr. Dominik Deimel, comuny
      • Gaia-X trust framework, Pierre Gronlier, Gaia-X

• #5 Data standards, the key to enable a European Health Data Space
  • PPT presentations: here
  • Moderators: Enrique Bernal & Carlos Telleria
  • Technical Facilitator: Alessandra Perna
    • Use case #5
    • Speakers Panel 1: Common Data Models:
      • The international patient summary, Stephen Kay,
      • EHDEN, OMOP and common data models, Sebastiaan van Sandijk, Odysseus data services
      • Data standardisation – Harmony alliance, Ruben Villoria, Health evidence
    • Speakers Panel 2: Data standards and semantic interoperability: 
      • health RI and clinical data standards, Jan-Willem Boiten, health RI
      • Rare disease data in health data spaces, Tala Haddad, Orphanet Inserm US-14
      • HL7 interoperability – lessons learned, Lloyd McKenzie, Accenture

• #6 Enabler trusted AI
  • PPT presentations: here
  • Moderators: Ulf Nehrbass, Christian Schorr, and Philipp Slusallek
  • Technical Facilitator: Vassilia Orfanou
  • Presentations and Speakers:
    • ​​​​​​​Use case #6
      • AI in healthcare – the transborder Clinnova initiative, Ulf Nehrbass
      • Strategic discussion on trusted AI, Prof. Philipp Slusallek and Dr. Christian Schorr, DFKI
      • How advanced anonymization can improve federated architectures, Tuomo Pertikäinen, VEIL.AI
      • Expert.ai natural language understanding, Gianluca Sensidoni, Expert.ai
      • AI-based risk prediction and treatment effect estimation, Prof. Dr. Thomas Zahn, Risikoanalytik
      • Trusted AI for data interoperability, Dermot Doyle, Dynaccurate

15:00 – 16:00 – Chapter 2b – Wrap-Up Section

Moderators: Ulf Nehrbass & Bert Verdonck

• Welcome & Opening
• Session feedback per use case
• Session feedback per enabler
• Overall summary
• Next steps
• Event wrap-up

Special thanks to LuxInnovation for hosting this event.